World Record Holder Seeking Cure for NF

07/17/2018 - 12:18

BeccaPizzi.jpgWorld Record Endurance Marathoner Becca Pizzi will run the Falmouth Road Race on Sunday, August 19th as part of the NF Northeast Team, a Burlington, MA based non-profit organization whose mission is to find a treatment and the cure for neurofibromatosis (NF). Pizzi is running on behalf of Dassault Systèmes’ annual sponsorship of NF Northeast.

Pizzi is 38 years old and lives in Belmont, MA with her husband, Joe, and 10-year-old daughter, Taylor. Having been the first American female to run the World Marathon Challenge in 2016 - 7 marathons on 7 continents in 7 days - Pizzi recently went back and made history by running it again and breaking the World Record: 6 days, 7 hours and 58 minutes. Her current goal is to complete a marathon in all 50 states and to run the Kona Ironman.

Pizzi was introduced to the genetic disorder neurofibromatosis through her good friend and running buddy Scot DeDeo, who is also a Belmont resident. His 2-year-old son Nat was diagnosed with neurofibromatosis type 1 when he was 7 months old.

DeDeo says, “I'm super excited that Becca will be running with us at Falmouth. To have someone of her caliber is hugely motivational to the team and will really help us bring awareness to neurofibromatosis.”

Pizzi is happy to be a part of the NF Northeast team and excited to help spread awareness to neurofibromatosis.

“I’ve run the Falmouth Road Race many times; it is one of my favorite races,” said Pizzi. “The race directors are very well organized, and they do an excellent job with the race and pulling the community together. I am especially excited to join the NF Northeast Team this year and raise awareness. Scot DeDeo is a very good friend and a huge asset to the community. I’m proud to call him a friend and happy to be supporting him and his family, whom I adore.”

About NF Northeast

NF Northeast is proud to have once again been chosen to be an official charity of the historic New Balance Falmouth Road Race. The organization is fortunate to have a full team of twenty-seven runners who will be representing NF Northeast on that day.

Neurofibromatosis (NF) is a genetic disorder of the nervous system that causes tumors to form on the nerves anywhere in or on the body at any time and affects three times as many people as cystic fibrosis and muscular dystrophy combined. Neurofibromatosis Northeast’s mission is to find a treatment and the cure for neurofibromatosis by promoting scientific research, creating awareness and supporting those who are affected by NF. For more information, please call (781) 272-9936 or visit the website

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